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Friday, 16 September 2011

Wherein I seek your advice

Tomorrow, my sparkly sneakers get another outing---this time at the Peterborough Pride Parade.  The last time I wore them to walk in a Pride Parade, they let me down, but I've been working on rehabilitating them, and they're ready.  If only I could rehabilitate my legs as easily.

I've been having trouble with my various motor skills for months now, and, after all manner of tests,  have arrived at a place where my doctor thinks I may have fibromyalgia.  He's working on eliminating other possibilities as there's no testing for fibromyalgia apparently.

Some of the things I can no longer do, but think I should still be able to:

  • jaywalk while a car is in the same block as me
  • retreive MegaBlox from under the couch (without a partner)
  • stand up while putting on my shoes
  • carry the only carriable granddaughter for longer than a few minutes
  • cross my legs without the help of my increasingly unwilling hands
  • get out of bed in one motion, although my bedhead is as good as always
  • rise gracefully from any sort of chair, sofa or bench
  • sit gracefully on any of those
  • fasten my own or anyone else's bracelets
  • jump for joy
  • be detected as drunk just by seeing me walk (haven't used this so far, but it is tempting)
  • keep from lurching into my daughters when we walk together (they claim I was never able to)
  • anything from The Joy of Sex
  • dance till dawn


I'm kind of angry about all that, but at the same time, I've told so many people, so often, how strong and healthy I am, that I'm going to have to hide the anger and concentrate on things that don't take strong limbs.  Any suggestions?

4 comments:

  1. Have you thought about starting to read? and write?

    Oh ... nevermind ...

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  2. You still have your beautiful mind.

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  3. Keep thinking of yourself as strong and healthy, no matter what. But then totally indulge yourself when you have to take it easier than you're used to. Somehow I just know that you'll take any situation and see the humour in it, so as long as you're still writing, all's well in the blogging world!

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  4. mind over matter… i think u can still do most of the stuff on that list. but joking aside, a doctor told me that fibromyalgia was a "diagnosis of exclusion", in other words if they don't know what's wrong with you, that's the label. sorry this prob. doesn't help much; but take 2 aspirin and call me in the morning. sorry too much wine, hey maybe more wine is the answer.
    carry on, i think u r just wonderful!

    ReplyDelete